SOCIAL MEDIA VOLUNTEERS NEEDED
Social Media volunteers wanted to help promote, develop and maintain our online presence in order to maximize our impact and to promote ourselves as widely as possible to the world.
We want volunteers to help RACIZ use social media platforms to promote our activities and achievements and keep our social media channels updated on a frequent basis.
We also want to encourage others to comment and share by ensuring that communication reaches a wide range of local stakeholders and diverse audiences.
Lastly, we need volunteers to help develop and manage content for our website and increase our social media on other platforms, such as Twitter, Pinterest & YouTube. If possible, track the effectiveness of our social media work and recommend ways forward. Regularly test content and review its impact, making sure that our events and news are up to date. Develop publicity materials and communication techniques to target communities that are under-represented.
This is an exciting opportunity as it will give you the freedom to grow into the role, whilst helping RACIZ to grow so more children can be treated.
We would like to have two more social media/web designers and an online fundraiser volunteer.
Sickle Cell Disease (SCD)
15-year-old Emmanuel Musonda, is among many Zambian children living with Sickle Cell Disease (SCD)
today; SCD is an inherited blood disorder that is passed on from both parents to their children, that
causes pain episodes, anemia (low red blood cell count), chest infections, yellowing of eyes known as
Jaundice and stroke being one of its complication as well as other symptoms. He lives with his parents
and four elder brothers in Lusaka’s Kanyama compound located on the west side of the city center.
Emmanuel is a vibrant young boy, always with a smile despite the disease taking its toll on him.
Musonda was diagnosed with SCD at the age of six months following an illness of malaria; Doctors at the
University Teaching Hospital (UTH) decided to test him for this as he had severe anemia and
unfortunately, he tested positive for sickle cell.
It is believed that approximately 1 in every 5 Zambian adult carries the sickle cell gene or trait, that has
contributed to an increase in the number of new SCD cases in the last few years. Like many parents in
Zambia, Emmanuel’s parents, Nicholas Musonda and Rebecca Musoni, did not know their sickle status.
Finding out that that their child had sickle cell disease came as a surprise because as the fifth child and
the only one who was born with this condition amongst his siblings. “It was not easy for us to believe
this news because Emmanuel was our fifth child and the only one diagnosed with SCD,” said Rebecca.
Most of the time upon getting any respiratory tract infection such as a cough or colds it would result in a
complication that affect children living SCD called Acute Chest Syndrome (ACS) which requires
hospitalization. We were in and out of hospital, 4 to 5 times or more in a year and sometimes we would
be admitted in children’s wing for three weeks.,” his Mother lamented.
On 1 April 2020, Emmanuel was enrolled under the Reach a Child Initiative Zambia (RACIZ) program
where he started receiving free Hydroxyurea, a drug used to treat SCD and to assist the under privileged
families who cannot afford to purchase this life long drug. The program is now helping more than 70
under-privileged children living with sickle cell disease in and around Lusaka. Every month, like many
other patients, Emmanuel heads to the University Teaching Hospital to receive his monthly medication
Ever since he started taking Hydroxyurea, Emmanuel has been far much better, he plays more with his
friends, he enjoys playing soccer in his neighborhood. He has less hospitalizations. He is in grade 6 but
due to his sickness, he has not been attending classes this term though his Mother hopes he can
continue in second term.
Emmanuel's father originally from Luapula Province works as a General worker in Lusaka town and his
Mother is a housewife. Apart from taking hydroxyurea, he is also taking folic acid and delta prim a
medication used to prevent malaria in people living with SCD.
More than 30 children like Emmanuel Musonda, received their much-needed Hydroxyurea drug on 2
April 2022 and more are expected to receive their drug in the coming weeks. Through its program,
RACIZ, also makes follow-up on all the children under its program to ensure that they receive their
A month full of designs for RACIZ
Our RACIZ/UNILUS Social media volunteers made this gems for us.
We are excited
Thank you Team!
RACIZ/UNILUS Social media TrainingRACIZ in collaboration with The university of Lusaka (UNILUS) is training 200 plus volunteers who have been divided into 4 groups.
These volunteers are students studying at UNILUS in various faculties.They will be our interns to manage our social media platforms in order to enhance their business skills and after this program each volunteer will be given a certificate of completion.
We are excited that we will be helping these students become better at social media marketing.
They will also learn more about the work we are doing as RACIZ thereby carrying out our online sickle cell awareness program.
These students will continue carrying out this awareness program in years to come.
It's our honor to work with The UNILUS business and nursing department Team.
RACIZ EDITORIAL TEAM Chief editor:
Mr Reuben Phiri - Partnership and Administrative Coordinator
August was a blessed month as Rotary Club heeded the call and responded with a donation of 2000 capsules (20 boxes) towards the RACIZ Hydroxyurea project which is in conjunction with the Childrens’ Hospital at the UTH. Hydroxyurea, a rare expensive miracle drug is used to treat patients that bravely endure and live with Sickle Cell Disease (SCD). Most of these brave SCD warriors come from low income households and as such their parents cannot afford to pay for this lifelong medication because of the cost. Thus the gesture by the Rotary Club of Lusaka came at the right time when RACIZ needed this partnership the most.
RACIZ Executive Chairman Dr. Indrex Chisawa speaking on behalf of the patients expressed his gratitude to the Rotary Club for the timely intervention and support to the Hydroxyurea project. “We are thrilled to have your support . Through your donation we are able to give medication to our warriors and we will continue working towards helping these children month by month through the Hydroxyurea project,” Dr Chisawa said, adding: “ You truly made a difference for us and our patients , and we are extremely grateful for your generosity. We look forward to working with you in future in order to help more children living with SCD in Zambia.”
UTH Senior Medical Superintendent (SMS) Dr. Mwenechanya who graced the occasion with other UTH staff, thanked the Rotary Club of Lusaka for their kind gesture and noted that the hospital rarely had the drug to prescribe to SCD patients. “ The hospital pharmacy last stocked the drug 2 years ago,” indicated the pharmacist who was in attendance. National SCD Taskforce lead Dr. Catherine Chunda noted that SCD had not only affected Zambia and the sub-Saharan Africa, but it has also become a global public health concern especially with regards to treatment and management.
Presenting the donation, Rotary Club of Lusaka Director of Programs Mr. Abraham Geevarghese said he and his team were delighted to help and pledged to continue with this gesture in future.
In a vote of thanks on behalf of the beneficiary parents, Mr. Mwanza, a father to two children living with SCD was all praises for the partnership of the Rotary Club, UTH and RACIZ. “You can see that I have two children both with the disease. It is very expensive for me to provide the medication and other requirements for the wellbeing of my children. The Hydroxyurea project has really helped my children.” " l almost lost my son but now he is still alive" .Mr. Mwanza said.
Sickle Cell Disease is a public health concern that has not received the attention it deserves and therefore requires concerted effort from both the public and private stakeholders to deal with the increasing number of cases in Zambia. RACIZ advocates that the fight against SCD should be made a public health priority by coming together to help families affected by this genetic disease that is passed on from parents who carriers (sickle cell trait) to children.
Most children with the disease come from low income peri-urban townships and from the rural parts of Zambia and can barely afford the expensive hydroxyurea medication and thus the importance of a robust multi-sectoral approach in mobilizing of resources to supplement their treatment requirements. Further, there is a requirement to heighten sensitization about SCD to every part of the nation on the same scale as that of HIV/AIDS.
As RACIZ we would like to encourage Zambians to visit the hospital to know their SCD status especially those intending to marry. It is important because if both parents have the sickle cell traits present, there is a 25% (1 in 4) chance with each pregnancy that the baby will be born with SCD. This will help couples make informed decisions should they wish to proceed to get married knowing they may have to cope with a child with SCD, or that they would rather separate for this reason. The choice remains with the individuals or couples.In order to deal with the present SCD burden, RACIZ calls for a multi-sectoral approach and appeals to more stakeholders to emulate the Rotary Club of Lusaka and come on board to fight the disease in Zambia through treatment and management of these children.
Here are some photos from the July Hydroxyurea refill handover.
WORLD SICKLE CELL DISEASE DAY
This World Sickle Cell Awareness Day
I'm honoured to join in another event to recognise the #sicklecellwarriors.
Here is #God at play.
I'm humbled to be among these greats to give a platform to sickle cell warriors.
These life coaches here will help anyone going through anything in life have a positive mindset
As per Dr Chisawa who had the privilege to attend one of these sessions face to face, they give you energy to see life from a winner's pointer of view rather than feeling sorry and miserable within.
"Winning in life starts from inside. If we can start encouraging our SCD warriors about their self confidence, that they have limitless potential within esp our adolescent plus their caregivers then we will be giving them hope and assurance from life experience. The coaches will help us see life from a different horizon"
Join us on Wednesday 16th June 2021 at
8pm Melbourne Australia Time.
12PM Zambian time
6pm Beijing time
SUPPORT SCD PATIENTS BY DONATING 1$ ONLY
Join Zoom Meeting
#GodAtWork #LifeChanging #GlobalSCDAdvocate
We managed to give hydroxyurea to 29 patients with Sickle Cell Disease. Month of May refill.